Today, as we had previously indicated we needed to take Rebekah back to Sick Children's hospital in Edinburgh to have another EEG brain scan performed over 24 hours. She has come home tonight with the computer and all the leads attached to her head and will return to sick kids tomorrow morning to have it removed. We are unsure at this stage when we will get the results of this scan.
In addition, Rebekah has seen two rheumatology consultants today regarding the other condition that she is suffering from and you may recall that we stated that the consultant was not prepared to confirm sarcoidosis and was running further tests. Today, the consultant has stated that the most likely condition that Rebekah has is sarcoidosis. She has ordered a CT scan of her chest today and is considering a further MRI of the brain. The consultants both said that following a discussion with the epilepsy consultant they may decide to commence further steroid treatment and to add an anti inflamatory medicine in with the steroids. This obviously, is a very big step for them and for us and would be for a period of at least 1 year.
Please continue to pray for wisdom as we await the further scans and advice from the consultants.
Jonathan, Jillian, Abigail, Rebekah and David.
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