As a family we have just returned from a week's holiday together which was a great opportunity to get away and recharge the batteries after the last few months activities. Over the past week though it has been pretty difficult with Rebekah as she has continued to decline in many ways. Having said that we have made the most of the time we have had and enjoyed many happy times together in the swimming pool and on the beach.
Last night as we sat having our meal together the mobile phone rang and it was the Epilepsy consultant from Sick Kids to give us details of the results of her latest brain scan. Sadly, Rebekah's condition has deteriorated and they are keen to get her back on to steroid treatment as soon as possible, along with another drug. The other purpose for the call was to tell us that they have had a meeting to discuss Rebekah's case on Thursday past and they have arranged an emergency MRI scan of her brain and a CT scan of her chest, both of these will be done under a General Anaesthetic on Wednesday coming. This is now needed to help them with the Sarcoid diagnosis but also as they are wondering again whether she has Neuro Sarcoid which is very serious in a child of Rebekah's age. There is currently research out there suggesting that this form of Sarcoid can cause very rare forms of epilepsy and Rebekah's one is listed as one of them.
We obviously, want what is best for Rebekah and would ask that you help us by continuing to pray for her and for us as we deal with the daily struggles that this brings upon our family at this present time.
Thanks again for your support of us.
Jonathan, Jillian, Abigail, Rebekah and David.
No comments:
Post a Comment