First of all thank you all once again for your continued prayers for Rebekah over these past weeks since she had the emergency MRI and CT. We have finally heard back from one of the consultant's this afternoon and the situation is as follows:
MRI & CT scans are both inconclusive. The Consultant has informed us that the only way that they are now going to get conclusive evidence is to take a biopsy of Rebekah's brain and chest which they are not prepared to do. The Rheumatology consultants are 75% convinced that Neuro Sarcoid is at work on Rebekah and they have decided to now start agressive treatment to try and bring it under control. With effect from Monday she will be going on to a very high dose of steroid along with an anti inflammtary drug which will attack her immune system.
In addition, the epilepsy consultant has confirmed that Rebekah's epilepsy is now as bad as it was back in February and that we are effectively starting the treatment there all over again.
This is an exceptionally worrying time for us as a family, we are struggling to see any light at the end of the tunnel. We cannot understand what is going on with our child and are struggling to take it all in. Please continue to pray for peace of mind, and help each day as we take each day at a time.
The last time Rebekah was on the high dose steroid it was exceptionally draining and neither of us are looking forward to this experience at all. We just trust and pray that we will be able to cope in the days that lie ahead as we deal with the issues of each day.
We do rest in the knowledge that we have a heavenly father who cares for us and we trust, pray and know that he will sustain us through these difficult days.
Specific prayer points
1. Pray for healing for Rebekah
2. Pray for her as she attends school and being on such high dose medication.
3. Pray for those who have the responsibility of teaching her, that they will be able to deal with her in the school context over the coming weeks.
4. Pray for the family, the impact on Abigail and David.
5. Pray for Jillian and I as we face up to the challenges each day brings.
6. Pray that through our suffering we may see the glory of our God in what is happening.
Thanks again for your prayers
Jonathan, Jillian, Abigail, Rebekah and David
