Thank you once again for all your prayers for Rebekah over the past few months. These past few weeks Rebekah has been doing a lot better and this has now been born out today at the Consultants appointment. Her latest brain scans are in the words of the Consultant "very good indeed" and her bloods were the only place that they were slightly concerned about today. They have repeated her blood tests and decided not to repeat the brain scan for three/four months unless there is a deterioration in the short term.
Once the results of today's blood tests are known the Consultants will decide between them whether they should commence the reduction of her steroids. They will want to monitor this closely to ensure that there is no deterioration in her health in the mean time.
The Consultants have said today that they are very conscious that the condition is medicated at the moment and they need to find the level of medication that Rebekah needs to be on to remain in a stable state. What they have said is that the current doses of medication that she is on is still double what they are happy to have her on long term so ideally if the bloods are ok today then they will want to try and reduce over the coming weeks her medication by half.
We continue to appreciate all the prayers of folks in various parts of the country and around the world for Rebekah and ask that you continue to uphold her in these days that we may continue to see improvement day by day.
It has been great these past weeks to see how well Rebekah has been doing with her school work and also to see how her speech has come on leaps and bounds. It has also been good from a family point of view that Rebekah has had this period of stability which has meant our loyalties haven't been split between the children as much as it has been at times over the past eighteen months which has been great.
In addition to the above it has been good to see Jillian coping much better. We are in the process of arranging for Jillian to take a career break to enable all the different appointments to take place without interfering with work.
Thank you all once again.
Jonathan, Jillian, Abigail, Rebekah and David
