First of all thank you for your continued prayers for Rebekah and us as a family. They are much appreciated and continue to be required greatly. Since our last post life for us has been exceptionally hectic and I apologise to those who have been looking for updates and I just haven't had a minute to do one.
Rebekah started school on 18th August and so far she has settled in well. Her Primary 1 teacher is very happy with her progress. One of the highlights for her over the last few weeks was when she turned five and we managed to take her with one of her friends to see the Edinburgh Military Tattoo.On the health front, we have a mixed barrel of information. At the last appointment with the epilepsy consultant she received a pretty positive report where it appeared that the epilepsy had responded to medication and was continuing to do so. We were told to monitor this over the coming weeks and if symptoms were to return then we were to contact the medical team. Over the last two to three weeks symptoms have been returning and this morning we heard that she is to have a further brain scan on 8th October. This will be a 24 hour ambulatory brain scan.
You will have noted from my previous update that the medical staff were also concerned regarding the other condition that she has which they have called sarcoidosis which is very rare in a child of Rebekah's age. Over the last week Rebekah has undergone a number of tests in connection with this and we are to see the rheumatologist on the 8th October along with a connective tissue specialist. The rheumatologist has been discussing her diagnosis with us over the phone and she wants to rule out a number of other conditions that could be causing the same symptoms before fully committing to sarcoidosis. She has told me that if she does commit to it then Rebekah will need to go back on to steroids and she would be on them for a very long time.
We have been concerned about a number of issues recently with Rebekah as we have noticed a lot of short term memory problems recurring and that she is getting her words jumbled up a bit. At her last visit to the speech and language therapist she confirmed that there had been regression. She visits the speech and language therapist again on Wednesday next week where we hope to get a further report on her progress.
Please continue to pray for Rebekah and in particular pray for wisdom for the specialists as they try to work out exactly what is wrong with her. It has been a roller coaster of a year thus far and I think it is safe to say that we are just living at the moment one week at a time. We do appreciate your prayer support and believe that without it we just wouldn't have got through these past months.
