Dear All
As I write this update we are very conscious that so many of you continue to pray for us through these difficult days. Well today we have some very good news and some not so good to share. We met with Rebekah's consultant at the Sick Children's hospital this morning. The meeting was to review the scans taken on the 15th and 16th of this month. The consultant reported that she was delighted to tell us that as far as the epilepsy is concerned the scan showed zero epileptic discharges which means that the medication is now fully working on that front. So much so that she will not need a further scan for a number of months unless there is a deterioration in the coming weeks. This is excellent news for us all as Rebekah prepares to go into Primary 1 on the 18th August. We are very grateful to God for this answered prayer at this time. Please continue to pray that her progress will be maintained in this area and that there will be no regression.
The second bit of news was not so good. As you know Rebekah has been suffering from Sarcoidosis as well. The consultant a couple of weeks ago re-ran tests which they said at the time they thought would come back inconclusive as there was still a significant amount of steroid in her system. However her inflammatory markers test has come back with higher readings than before she went on the steroids. The normal reading is 65 or less and hers has come back at 133. This result ties in with the deterioration that we have seen with Rebekah over the past few weeks where symptoms have been returning with avengence. As a result she is now being referred back to the Rheumatologist to have further investigations carried out. Please continue to pray for this aspect of her health as well that the Lord would see fit to heal her of this in the coming days.
We also reported in a previous update that Rebekah was due to have some kidney investigations which we are also pleased have come back with a positive report.
Rebekah continues to be seen by the speech and language therapist in Livingston. We are delighted that a lot of the issues with her speech have cleared up with the treatment that she has been receiving but there are still issues that need to be overcome. We will now await the further appointments for the tests that will inevitably have to be carried out at sick kids by the Rheumatology department.
Over the coming weeks we would ask you to keep us in your prayers. We will post further updates as we have them.
Thank you once again from all of us for your support at this time.
Jonathan, Jillian, Abigail, Rebekah and David
