Happy New Year to all our followers. Sorry it has taken soo long to update Rebekah's blog. The latest news on Rebekah is not good. The last EEG scan showed some epileptic activity but not as much as earlier scans. However, the blood tests carried out in Nov/Dec time have shown a deterioration which in effect put us back to when Rebekah first took unwell in Feb 2009. So much so that one of our Cons's in Sick Kids phoned us last week, whilst we were up in Dingwall, to instruct us to put Rebekah back on a course of steroids - 10mg/day for 2 weeks then 5mg/day thereafter indefinetly. Also as she has been on steroids for over 2 years now they have had to put her on a stomach tablet to prevent her from getting stomach ulcers etc. This is again a worrying time for us as a family. There is so much uncertainty surrounding Rebekah. For us, we have not been getting our hopes up as you will remember our hopes were dashed the last time she came off the steroids. However, we remain hopeful and continue to pray for our daughter that she will be healed. We have already seen how God can use Rebekah to help other children in Ward 7 at Sick Kids and believe that good will come out of all of this. Rebekah is keen this year to raise money for Ward 7 (Neurological Ward). This might involve cycling, car boot sale etc so we will try and keep you updated as to when, what and where! As many of you will know steroids have a lot of side effects. They can disrupt sleep patterns/behaviour/diet/social interactions to name a few. All of which have an impact on our other children Abigail (8) and David (5) and ourselves. We do have an appointment to see our Cons's again in a couple of months time. Thank you for taking the time to read this and we do appreciate all your support.
Jonathan & Jillian
No comments:
Post a Comment