Just a quick update today on Rebekah. We have a meeting tomorrow with Dr Ailsa McLelland (neuro cons) and Dr Davidson (connective tissue cons) at RHSC in Edinburgh at 2pm. Please pray for us all as we attend this appointment. Rebekah is now on 8mg Prednisolone as well as all the other medication she is on. She is also taking 50mg Azathioprine and 15ml of Clobazam every day. In fact she now has a competition with her Mum to see who can take their tablets the quickest! We are blessed by the fact that she is so good at taking them all. Good old Irn Bru comes in handy!! In some ways there has been an improvement in this last month with her reduced steroid intake but in other ways there has been no change. Her behaviour and mood swings have been quite horrendous and challenging for us as parents and her siblings. In fact if you read over the last blogs this has been a constant problem from the outset. In recent days there have been a few outbursts in a public setting which have been quite alarming in nature. This is due partly to meds but also can be attributed to her illness. She continues to be at school and is doing well. We have a meeting on Thursday am with an educational psychologist so please remember us for that.
Prayer Points:
Wed 3rd Nov Meeting with cons's at RHSC
Thurs 4th Nov Meeting with Educational Psychologist at School
Behavioural issues and Mood swings
For Abigail and David
For Mum and Dad
We will update you in the next few days as to outcome of these meetings.
Thank you for your continued prayers and support
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