Thank you once again for your continued prayers for Rebekah.
Just a quick update on the appointments with the consultants at sick kids. The meeting went well, the consultants believe the medication is working. They are still not 100% certain on the diagnosis but now believe very strongly that the epilepsy is a lot more linked to her inflammatory condition than it being a totally separate condition.
They have agreed that she would remain on the same level of medication as she is now for the next three months and we will be seen by two of the Consultants again on the 19th May. The brain scans and blood tests will be repeated again in four to six weeks time.
In three months' time if there has been relative stability they will start to reduce her medication, they still feel the level she is on just now is still too high for the longer term and would like to get it down to half the current dose at least.
We are very grateful for all the support we have received over the past number of months and would ask you to continue to stand with us through these difficult days.
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